Good News???

If you came here for good news, I don't think I can deliver but did you really expect that I would? Me neither.

After sitting in Dr. Eckard's office with Scott for FOUR hours, he didn't really give us a definitive answer. The studies weren't done at UCLA so it is difficult for him to compare the studies and definitively decipher if indeed the tumors are larger BUT given the fact that the report states they are AND I continue to have pain, chemo is probably next.

He will present my case again at the Tumor Review Board and render a decision either for another surgery or chemo. He agrees with Dr. Newman that the consistency of these tumors are so similar to the muscle tissue that they are sandwiched between that it will make it difficult to take them out completely. I understand what they are explaining better after having seen the MRI images yesterday. The tumors aren't that pronounced but you can see the little spiny edges that they have always been so worried about.

This is the same approach he took when he recommended radiation so I am very sure that he will come back saying chemo. He called it a low dose chemo and even gave us the names of the drugs but it was all too much to take in and I don't recall. Scott wants me to stay off of the Internet so if he recalls he isn't saying so.

The one positive thing that came out of yesterday was that he HAS seen and treated similar cases and eventually he got the tumors to stop growing. Hopefully I will fall into that category soon.

The Tumor Review Board meets today so I should expect an answer the beginning of next week. The staff over there isn't too swift so I will keep after them to remind them about little ole me :-)