This week has not been a good one! I never really bounced back from my treatment last week. I have been very tired and just had a general but overwhelming feeling...of feeling like crap. I can't really put specifics to truly describe what is wrong. I just knew someting wasn't quite right.
My visit this week wasn't until Thursday because of scheduling conflicts with the chemo nurse. I first had my appointment with the doctor. One look at me and it was evident that I wasn't feeling well. We talked a lot and watched him stare at his computer...a lot!
My blood counts came up a bit more...good news. I am still not in the normal range but he said "you will never be normal!" His attempt at humor. They have low expectations for me, I guess. But my numbers improved and I still haven't gotten sick from having few white blood cells. That is one for the very lonely "positive" column. I still need to be extremely careful.
My liver...what do I say about this?!?!? It seems that my liver isn't cooperating either. My weekly blood tests reveal that something isn't quite right with my liver. This could be the reason I feel so badly. I am having pain on my right side, just below the ribs. Hmmm! Chemo nurse said I should have mentioned this to the doc. I can't keep all of my ailments straight. There are so many and I try really, really hard not to be that patient who complains about EVERYTHING. Apparently, this could have been useful info.
The plan...I had to go back to the lab for a urine culture, to rule out a urinary tract infection. I know I don't have one. I don't have any of the symptoms. I have never had one but I understand the symptoms...and I don't have them! But I did what he asked and went to the lab. I am on antibiotics in case there is an infection because Idont' have the immune system to fight it.
If I don't improve and depending on more blood tests on Monday, I may have another scan or ultrasound to check for stones (gallstones?). I am now piecing all of the clues together (Karen, I do have pain in the back where you described! It's just not constant and I forgot about it until it starting hurting again!!!) and this could possibly be gall stones! Good heaven's...really!!! What on EARTH is going on with me!!!
So, no chemo, more tests, back on Tuesday. This is the plan for now other than just resting which is all I have the energy to do. My hubby and kiddies are hanging on as best they can. It kills me that my kids have to see me in bed, looking awful and I can't get up to do anything. This isn't their mother...they aren't used to seeing this, no one should. I would almost have been better for me to do high dose in the hospital because they wouldn't have had to witness all of this scary stuff. And my hubby..he IS a good man! He has picked up all the slack. I feel so guilty. He has been there to pick up where I left off. Even with all the crap from outside sources, he is being tugged in every direction, he comes home and takes care of his family. Not every man is up for that task! He leaves it at the door and comes home to his family that isn't quite right, right now. It is times like this that you see what people are really made of...my husband is a good man :-) Told you it was a bad week! It has been full of struggles...
Oh and those dreaded mouth sores I have been so desperately trying to avoid...got one! I didn't call the doctor because I have been expecting them to rear their ugly heads. Doc wasn't too pleased that I didn't call him. Seems it could turn in to a life threatening infection....especially since I don't have much of an immune system. Hmm, lesson learned! So much to learn when they are pumping poison through your veins!!
Amazing, amazing folks have pulled together some great meals this week! Thank you to the Milton's, Simmons, Bartholomew's, Loya's, Carew's and Rogers! No amount of words can ever express to you our gratitude not ony for your meals but your amazing friendship. You have all picked up the phone and checked in on us. You constantly remind us of just how much you care about our family. Thank you!
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Oh my dear Stacy.....I hope they figure this all out pretty soon. FYI, I've been through gallbladder surgery if you want a first hand account. Saying another prayer that you are well soon. ~Marie
ReplyDeleteHi Stacy...It's Paul..Randene's husband. Please feel free to call us anytime day or night if you need anything (949) 275-1834 or (909)815-0450 both are cells or 364-0073 home.Remember,it's not how you start but how you finish and I know you are a strong finisher.
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