Wednesday, May 25, 2011

Still Waiting

I called yesterday but they have not heard any news. She said with a major cancer center such as City of Hope, they do take quite a while to render a decision. I want this so bad...I'll keep you posted.

Friday, May 20, 2011

Still Waiting

I called my primary on Tuesday to check in on the status of my authorization. She told me the insurance company has asked twice for more details of my diagnosis and treatments. The first request came in for more info regarding how good of a lab rat I have been and the second request came in on Monday for a specific doctor's name. Apparently they just put City of Hope and they wanted a specific doctor's name written down. They supplied them with one and now we wait some more.

For those of you counting (and I'm one) it has been SIXTEEN days! I sure hope they decide soon. Call me crazy but I think that since they did not just say no, then there is hope. I may actually get this approved. Wouldn't that be nice??

Friday, May 6, 2011

Oh My Word!! Why Does This Always Happen To Me!?!?!!?

Thursday, May 5th was my return visit to my onco. He was to take the CD of my last scan (1/3/2011) to the hospital review board and have the radiologist take a look at my case. It was my hope that this new, extra set of eyes would be helpful in providing insight and perspective. He did not take the disc in for a second month in a row! So my time and money was wasted again!! I am not sure why it is acceptable for a doctor to do this to a patient, no less an oncologist! I am just as unsure why in the h@#$ I have been putting up with this from him and for so long!!!

I am told to return next month in hopes that the third time is a charm. I am fairly certain I won't be making it to this appointment! Since I was in such a bad mood leaving this appointment I decided it was time to make some noise with my primary care doctor. When it rains, it pours!

I had called on Wednesday to check the status of my authorization for City of Hope and oddly enough they could not find any evidence of it anywhere. It had been 8 days and the doctor stated that I should have it back before I had my onco appointment. The gal took all of my phone numbers and said she would call me back. Hmmm! She never called back. So after my visit with my onco on Thursday I was fit to be tied! Someone was going to hear me out...I was angry!

I placed the call as I sat in the parking lot of my oncologist wanting answers. I was told simply that the authorization had not yet come back. Since the doctor said that I would have it back in plenty of time BEFORE seeing my oncologist I was sure something was amiss. AND I was sure it was due to the person in charge of submitting the authorization did not do her job. After some badgering I was able to get her to fess up. She had not done what the doctor asked when he asked. It was only brought to her attention when I called inquiring about the results. Ah...well at least she owned her mistake but I can tell you I wasn't in a good mood. After I expressed my frustration at not having anyone take this as seriously as it needs to be and the fact that this beast could very well be growing out of control and I have not had chemo since November...... Luckily I was met with a kind, sympathetic, very apologetic human being on the other end of the phone. She realized her mistake (we all make them) and she assured me she would not stop until she got me into another oncologists office as quickly as she could make it happen. She also invited me to call her 10 times a day if that is what I needed to do. I appreciated how she handled the situation and I just may take her up on a daily phone call.

This is my weakness but I believe that she will not forget the sobbing, scared and very frustrated patient on the other end of the phone. I am completely emotionally drained from these damn tumors! I have nothing more to give them! They have taken so much from me and I so desperately want to be done with them. I hope this doctor can get me to something better...someone more knowledgable....and if he can't, the courage to acknowledge he needs help from someone else. To date, I have not received such care. :-(


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