What Better Gift?

I am happy to report that on Friday, August 12th (Hannah's 8th birthday) I received the best gift I could every dream of!! My CT scan came back clear and free of disease!! The doctor says there is nothing needing to be treated so I am free to live my life until December. Desmoids have an extremely high recurrance rate so I am realistic but loving being free....even if it just for now! Who knows, maybe I'll be one of the lucky ones!

I need to be closely monitored so my return visit is in December to check in on everything. I have to also say that as much as I didn't want to see this oncologist (my oncologists partner) I really think that I like her. She, too seems to love my husband and has a good beside manner but more importantly she doesn't dismiss me. She actually tries to answer my questions and not dodge them. Without me even mentioning a word about it she began to address my mobility issue. I was impressed that she didn't say, "ah you're cancer free, what more do you want?" She actually remembered that I am having new symptoms (numbness down my left side through my leg) and they bother me. She offered some stretches that she hoped would help and she read my face well that I wasn't sure I could do them. It's embarassing but I am almost completely immobile in my left hip and I often look quite ridiculous trying to do certain things. She asked me to sit on the floor so she could see that I truly understood what movements she was describing. When I couldn't figure out exactly how to get to the floor withouth looking like a complete idiot she blurted out...."you need physical therapy!" Ah! Ha! See I've been asking for this for years. A young person should be able to sit on the floor with her kids...I can't. Not comfortably anyway. So she demostrated the stretches and put in for an authorization for PT.

So we think we like this one much better. She still did ask which doc we would follow up with in December. I didn't like that but maybe she was just double checking that we still wanted to go with her. Not sure really but who cares. I told her the last I saw or spoke to him was May 3rd and he has not inquired about my health or whereabouts since then. She laughed and I said I'm sorry if that is awkward for you. She laughed again and said no, see you in December.

The thing on my foot, well it needs to be addressed but the onco thinks it's probably just a cyst on the tendon. I have a follow up with the primary to check on it's size. We need to figure out what to do about it because it's painful to wear shoes. When it gets too cold for sandals I will be in trouble. This...I can handle. Put a needle in that bad boy and drain it if you have to. In the past 3 1/2 years I've been through soooooo much worse than that!!

Thank you all for your love and support!

We made it to the end! Hopefully putting the final chapter in this very long story!

I'm hopeful...

Stacey