The results are in and they are normal! Has a nice ring to it...i'm not called normal very often. The plan is to continue to monitor my left ovary and watch the growth and see what happens. Bleeding has continued and heavy at that but we are just watching that, too.
I can't say for sure but I suspect this is just my body trying to get back to normal. That would be nice!
I had to cancel with my oncologist because the results of my biopsy were not in yet. It wouldn't have been a productive meeting had I gone since I had no answers. I will re-schedule and start back up with chemo. I've enjoyed the break but I can't avoid what needs to be done.
Oh! And I'll be trying to get away from the current oncologist I just don't know how much of a fight that is going to be....
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I was reading your post and I am Happy to hear that your results are normal. :) I have been dealing with pain on my left side for about 3 years now. When I 1st started having this pain I went to see my doc and he ordered for me to have an ultrasound done but, I got scared and never went. As the years went by the pain gets more and more painful and acures more often. It is now that it very painful everyday. Well I finally went back to see my doc again and he sent me for an ultrasound and I went. While I was getting this done the lady said its a tumor. Well I left and came home and just cried and cried. Well a couple of days later I went in to the office to find out what the results were and this is what they thought it was, 1. desmoid tumor, 2. endometrioma, 3. metastatic lesion. I also have a cyst on my left overy, which never caused me any pain. So, futhermore I was sent to an ob gyn and he said he wanted to do an laparotomy. Well this was the worst thing ever. He was supposed to go in my left side considering that was the problem area. well needless to say when I woke up he had went in on my right side and said he didnt see anything and the only thing he did was drain my cyst. So the very next day I called my doc and told him what went on and he didnt like the fact this other doc went in on my right side. So, he sent me to have a CT scan done and the next morning after having this test done his calls and of coruse I was like GREAT this is bad he is calling me himself. Well he asked how I was feeling and I said I was fine and he asked are you sure, I said yes but whos to know in a couple of days. Well then he tells me what the ct scan concluded and it said it is a desmoid tumor. So, he wants to send me to UVA because they deal with this kind of stuff and the docs around my area really have no clue what they are doing. He also stated that if i needed anything to let him know, that he wants me to have little to no pain whats so ever. He is doing right by me and I am so greatful to have a caring doctor as he is. Right now I am waiting for an appointment for UVA. Not much info on the internet. As I was reading your post, I keeping thinking am I going to have to go through all of this? I am scared, that one day I am going to have to leave my husband and our 5 kids. I want to know much more about this kind of tumor and the road ahead of me. Did I metion I hate the waiting game!!! lol Anyways if you could help me out on any kind of info, it would be great!!! I wish you and your family the best!!!! RC- winchester, va
ReplyDeleteHi Robin,
ReplyDeleteI'm sorry you have to go through this. I have a great friend who has done a lot of research for me that I can share with you. You can email me directly at Stacey.wheeler@me.com
Hang in there. It is a waiting game and unfortunately there aren't a lot of answers out there if it is a desmoid.
Stacey